I was inspired to do this today. “A Thank You to 21 Pilots for ‘Migraine'”

They gave us, the chronically misunderstood and underestimated, an anthem. It is nearly anonymous across the community that “Migraine” has become our theme song and rallying cry. As I listened to it again this morning with tears streaming down my face, I felt inspired to reach out and thank them for speaking their pain (I actually don’t know which of them has migraine disease or if either of them does) which helps to decrease stigma; and also for presenting us with both security blanket and super hero cape for our darkest moments.

So, things are bad and scary. I still have hope.

So I do feel sort of protected by the universe. I do feel that every little thing is gonna be alright. I believe that my appointment today is going to go great, and my headache threshold will continue to stay lower, and that Dr. Dafer will agree to see me, and that when erenumab is released I will have access to it, and we either will or won’t discover the cause of the neuropathy but who cares.

Bulbous Basilar Bolstering

The reason I’m going with such a cringe-worthy title for this post is because I want all these entries to be easily distinguishable as a “story,” or thread with a beginning and end and therefore similar titles. This is the end. This purpose of this piece is to celebrate the extreme, positively overwhelming support I…

Hello, It’s Me (Part 2)

So there we were, me hauling costumes and my purse; Zo with her book bag on her back and pulling the supplies bag behind her like a caboose. A wave of sick heat rolled over me, with that horrible certainty as your stomach contents rise toward your throat. “Zo, I’m going to throw up.” And…

We Are Standing on the Edge…

I just basically want everyone to know that my family and I will be okay. Everyone has things that go wrong. Everyone gets sick. Everyone has trouble now and then with government red tape. People change jobs. All of it is possible to deal with and all of it is way better than losing a…

FRIENDS

Yesterday’s post was written in the throes of depression and fear. What I should never have said is that I lack friends. Yes, I’m disappointed to have recently lost some of the closeness I’ve felt in some significant relationships, but honestly I have more friends, far and wide, in person and online, than I probably…

It’s Raining Spoons

While some very stressful things are happening in my non-illness life, MAN have I had a couple of migraine days to die for. Some of the experiences require separate posts, like the fact that despite having moved to WordPress only a week or so ago, I have been nominated for a blogger award (Liebster coming…

~ thank you

I am amazed to have followers, in one day. Survivors whose blogs, chronicles of pain and triumph, I had already noticed and admired. The thoughtful comments on what initially felt like a frivolous post (changing the lyrics of a well-known song) show so much caring and community, understanding and acceptance of what is a tremendously…