Aimovig.

“Aimovig.” A drug developed just for migraine disease, the very first preventative: “Aim.” “Vig” = Vigor, what we will have more of, even if improvement is only 10-20%. Generic name: erenumab. Drug company: Amgen / Novartis, who are not paying me. Side effects: possible injection site irritation and constipation. Have you looked at the side…

‘Being tested by a ruthless examiner’

I had to go to the ER last night for the first time in 3 months with the worst pain I’ve had since my hospitalization last year. You can see how red and abraded my forehead is from heating pad burns and John’s tapping technique and my literally hitting it over and over with a…

Painfully Employed

Push, pull, bend, stretch, crouch, carry, crawl. Upstairs, light filters in and the peace is something you can almost hold in your hand were it not already grasping three plastic-coated hardbacks in a basketball grip or piano finger stretch as you skim the romance section L’s. Lauren, Laurens, Laurent. Lace and Leather, Last Chance, Let…

So, things are bad and scary. I still have hope.

So I do feel sort of protected by the universe. I do feel that every little thing is gonna be alright. I believe that my appointment today is going to go great, and my headache threshold will continue to stay lower, and that Dr. Dafer will agree to see me, and that when erenumab is released I will have access to it, and we either will or won’t discover the cause of the neuropathy but who cares.

How will the Opioid Epidemic Affect YOU? Click here to find out!

Ha ha ha, the blogger types bitterly, with no laughter at all in her tone. Did you like that click-bait title? I disagree firmly with the term “epidemic” in reference to opiates considering how many people die in mass shootings (and NOTHING is done! Restrictions are loosening!); from alcohol; from car accidents; from cigarettes. I…

The Meds of Medusa

As my neck is still horribly stiff and painful in a way that feels connected to the 9 day old migraine that was finally obliterated on the second floor of Wood County Hospital Friday morning at 10 am, I am sitting here thinking of the amount of medication it took to truly break it. In…

Serotonin Stockholm Syndrome

For those of us struggling every day with chronic invisible illness, one of the most discouraging feelings is realizing that someone may not believe the pain we’re suffering. It might be the careless observation of an acquaintance (“But you don’t look sick”); the frustrated words of a well-meaning friend (“You’ve tried so many medicines and…

Medication Overuse Headache, BITE ME.

Since detoxing from NSAIDS, I’ve been really trying to be careful about over medicating, which is only an option since I’m not working. So I am supposed to ideally only medicate twice per week. Okay, that’s crazy, I’m just not there yet. So, I’m trying to only take Tylenol 2 days per week; Imitrex 2…

My Own Catch-22

My long-awaited appointment with my neurologist, whom I saw for migraine for at least ten years before switching to Dr. H, is approaching on Tuesday. It took me months to get in with her; I’m a new patient again. I am unaccountably nervous. So much depends upon this appointment. Are her treatment methods still the…