~ thank you

I am amazed to have followers, in one day. Survivors whose blogs, chronicles of pain and triumph, I had already noticed and admired. The thoughtful comments on what initially felt like a frivolous post (changing the lyrics of a well-known song) show so much caring and community, understanding and acceptance of what is a tremendously…

My Own Catch-22

My long-awaited appointment with my neurologist, whom I saw for migraine for at least ten years before switching to Dr. H, is approaching on Tuesday. It took me months to get in with her; I’m a new patient again. I am unaccountably nervous. So much depends upon this appointment. Are her treatment methods still the…

Anger, again

You can’t give up when you have children. On Wednesday, Mitt Romney visited the Community Center where I work. It was four days of intense, horrible, exciting insanity. The next day we all were worn out, with headaches, of course myself included. After being at work for only about 40 minutes, however, my head pain…

Month of Missteps

It’s been a long, painful three weeks since I last wrote for this blog. Having reached another very frustrating point, I re-read my last two entries late last night, and what I discovered was extremely eye-opening. I am SO glad that I documented the experience of feeling fantastic, and then the next day, NOT feeling…

Don’t Get Cocky

I should have fucking known better. You know? Years and years, knowing that if I talk about my improving health situation, it seems to always backfire and not remain true. This is a cruel comparison, but one I feel it’s my right to use because it happened to me: I was pregnant, but only about…

Reflections on a Year’s Worth of Changes

As we begin preparing for our annual trip to Cape May, New Jersey this week, I can’t help but think about how things were for me last year at this time. Writing a blog, first of all, would have been totally out of the question. One month away from one of the most drastic surgeries…

Natural One

I have never been a big believer in natural remedies and therapies for my migraine disease. I’ve tried acupuncture, biofeedback (with and without electronic machines), talk therapy, hypnosis, physical therapy, massage, and chiropractic care; as well as magnesium, B2, feverfew, and ginger. I believe some of the therapies would work in conjunction with medicines to…

Black Hole Sun

My latest preventative medication attempt was Lamictal. It is an anti-seizure medication used very successfully for bipolar disorder. It has also been used for migraine prevention, off-label of course. I have taken it before, but couldn’t remember any specific side effects or why I stopped taking it. The usual problem for me from this type…

plus c’est la mème chose

When I saw the missed call and voicemail from my doctor’s office on my phone during my dinner break at work, I wasn’t worried. After all, I was set for an appointment there in two days to receive Botox for Migraine, a long and intrusive procedure requiring 31 injections and all sorts of hoops to…

plus ça change

04.23.12Sigh of relief. My appointment with the attractive, young, and aloof Dr. “Manhands” went well. Even though he knew I would be seeing Dr. T in August, he still asked questions and put some thought into my situation. He asked whether I’d ever tried Lamictal, which is a mood-stabilizing anti-seizure med used off-label for migraine….

what is life for

These are among the very worst days of my life. Days when there is something important going on and it’s imperative I not be sick. Days that only come once a year, like your daughter’s birthday party with her first grade friends. Significant for so many reasons. That significance on its own, the heavy weight…