Dear Hospital CEO: a letter finally sent

Last year on March 1, I had an unexpected and devastating visit with the DO who had taken over as my primary care physician. She had done a lot for me: set up my first mammogram, referred me to an amazing pain specialist, and while I was in a CGRP study prescribed the other migraine…

The Meds of Medusa

As my neck is still horribly stiff and painful in a way that feels connected to the 9 day old migraine that was finally obliterated on the second floor of Wood County Hospital Friday morning at 10 am, I am sitting here thinking of the amount of medication it took to truly break it. In…

I am now a Patient Advocate and Contributor on Migraine.com

Sometimes, everything lines up in exactly the right way. My favorite headache blogger, Kerrie Smyres of The Daily Headache, had posted an article about several available CGRP studies and the pros and cons of getting involved. Since one of the studies was Amgen, I commented that I hadn’t had a hugely noticeable improvement on that…

Migraine365 & Dr. Mitzi

My appointment today with Dr. Mitzi went very well. I explained that my headaches had improved in severity but not frequency, and that I’ve been having a lot of trouble with anxiety. She said she doesn’t often prescribe benzodiazepines, but that she would for me. I told her that I see a pain therapist twice…

38 Weeks

I finally gave in and went to the ER last night for a migraine I’d had since Monday. I’d gotten as many as 6 hours of relief at a time from Imitrex, but the thing just kept coming back. It was the longevity that broke me… not the severity. This streak of not needing the…

The Migraine Diaries on Kindle

Late last night, I completed my first short story for digital publication, a much expanded version of The Migraine Diaries Three [1981] already found on this blog. J used a picture of me at the age I was in the story and created a Migraine365-esque cover for it; I am planning to publish “chapters,” about…

Day 27: Horse Lessons | Bank meeting

I love Fall, but 60’s and cloudy is a shitty combination. It’s chilly and damp, damp that seeps into your bones, without real rain, but it seems to always be threatening. I HATE when it’s hot, I do. But the weather the last few days seems wrapped up in how I’m feeling, which is dark,…

Day 9: all in all is all we are

I don’t have much to say today. I had to deal with the Ohio DMV, to get my license renewed; X came home sick; I printed out the forms for the CGRP studies and picked up medicine for the kitten. I am trying very hard to not take any imitrex even though my head hurts….

Social Security Situation

So I forgot about another very important thing that happened yesterday! Monday night I finally took a close look at the Benefits Letter I received from the SSA about my SSI. I had been told on the phone that I would be getting some back pay from when J was unemployed, but nothing in the…

Depletion

No one can help me. Not my partner Not my parents Not my friends Not my children Not my doctors Not my dog Not god. Everyone is tired At the end of the ropes with which I tie them to me. I am tired of asking for support Favors, babysitting, Rearrangement of schedules, For people…

#MHAM Blog Challenge, Day 25: Exhaustion

The AMHA Blog Challenge topic for today requires us to watch a video. I had basically stopped doing the MHAM blog challenges, because so many of them have been about songs (listen to this); or ideas expressed in TED talks (watch this) and I just haven’t had the energy. Watch that, and write a blog…