Good Things.

Very soon after I wrote the WWED entry, on February 18, things lined up in that magical way that sometimes happens, the way that makes me feel like the universe is letting me know I’m doing something right. It started with panic. I had a week or so left of my Ritalin preventative, no Ativan,…

Upon The Loss Of Another Doctor

This job, the simple job of pretending we feel all right while hugging our spouses and kissing the tops of our children’s heads; of negotiating new doctors and treatment plans and insurance coverage and basically having to BEG for the basic care we deserve while burned-out advocates, as they occasionally must, slip away to their…

Heaven Beside You / Hell Within

I am lying here in bed with tears streaming down my face, pooling on my neck in little puddles. I could not take X to school this morning and my parents have Zo. John went back to work with Trey the Tree King. I can tell you for sure that crying hysterically does nothing good…

Little Girl X

Getting over the four shots of DHE I had yesterday, my stomach roils angrily and my head still hurts just enough to be annoying. I’m spending another day in bed, at least partially. Zo sleeps part of the night with us, invariably. So I was none too thrilled when X wandered in at 3 am…

Disability Benefits Checklist

“Names, addresses, phone numbers, patient ID numbers, and dates of treatment for all doctors, hospitals, and clinics.”   Um, okay. Let’s see… I was diagnosed with Migraine by a Dr. Brown here in BG when I was 8. That would have been… 1981 or so, and he prescribed Fiorinal, I can’t remember if that was…

Status: Jobless Migrainosus

In December 2012, John had me convinced in the length of one shift at work that I should quit my job. Leaving that day, had he asked, I would have said, “No way. I need my job, it’s a good job. And we need this money.” I actually did figure out how much I might…

The Liebster Award

I have been writing this blog since April 2, 2012 but only moved to WordPress from Blogger last Saturday. There have been a lot of changes in my household since that first entry, mainly that there is now no one working outside the home. I had to quit my government job because I was missing…

It’s Raining Spoons

While some very stressful things are happening in my non-illness life, MAN have I had a couple of migraine days to die for. Some of the experiences require separate posts, like the fact that despite having moved to WordPress only a week or so ago, I have been nominated for a blogger award (Liebster coming…