Dear Hospital CEO: a letter finally sent

Last year on March 1, I had an unexpected and devastating visit with the DO who had taken over as my primary care physician. She had done a lot for me: set up my first mammogram, referred me to an amazing pain specialist, and while I was in a CGRP study prescribed the other migraine…

The Meds of Medusa

As my neck is still horribly stiff and painful in a way that feels connected to the 9 day old migraine that was finally obliterated on the second floor of Wood County Hospital Friday morning at 10 am, I am sitting here thinking of the amount of medication it took to truly break it. In…

Hello, It’s Me (Part 2)

So there we were, me hauling costumes and my purse; Zo with her book bag on her back and pulling the supplies bag behind her like a caboose. A wave of sick heat rolled over me, with that horrible certainty as your stomach contents rise toward your throat. “Zo, I’m going to throw up.” And…

The Migraine Diaries #2: Election Day [2008] available now on Kindle

My second short story in The Migraine Diaries series is now available on Kindle!  Link to The Migraine Diaries 1: Diagnosis [1981] Link to The Migraine Diaries 2: Election Day [2008] I am really proud of this one. Writing about myself as an adult is much easier; I am able to use my own true voice much…

Migraine365 & Dr. Mitzi

My appointment today with Dr. Mitzi went very well. I explained that my headaches had improved in severity but not frequency, and that I’ve been having a lot of trouble with anxiety. She said she doesn’t often prescribe benzodiazepines, but that she would for me. I told her that I see a pain therapist twice…

general update.

I have had an unrelenting headache for three days. It isn’t too severe, but nevertheless pricks and pokes at me and brings accompanying aura, allodynia, and irritability. I’m not happy about it. For some reason, nothing I take is working. I had my last appointment in Ann Arbor yesterday for the double-blind phase of the…

365 Days of Migraine, Days 40 & 41

I am trying not to feel as though increasing my Cymbalta again is a defeat. I have been fairly debilitated by depression for about six weeks; I’ve waited long enough. I’m hoping that the improvement will come soon. A longtime family friend commented on Facebook today that she thinks of Migraine365 as a “graphic journal.”…

Day 29: The Way Through

Text of Page: 09.16.14 | Day 29: The Way Through | Migraine365 | Medical debts | Zo’s ballet bag | Zo | elizabeth | We needed light bulbs, yogurt, and juice | Crushing depression today. Sleep disturbed by realistic dreams of heartbreak and homelessness. I didn’t know how I was going to get Zo to…

Day 25: Who We Are

I feel a little weird today, and I’m not sure why. Yesterday, actually, was fantastic. I finally got the phone call made to the office of my new neurologist, and that appointment is on October 29. I also talked to my childhood friend who is a research nurse at MHNI. We’ve been kind of playing…

Day 14: injection

365 Days of Migraine Day 14: Injection |Today I almost missed my own birthday party. The normal “wake up headache” did not improve from 1/2 imitrex & Percocet as it usually does, and I realized while J was meeting with his client that I didn’t even feel well enough to pick up my prescriptions and…

365 Days of Migraine: Day 4 “postdrome”

I guess I forgot Day 4, which makes sense, considering that it was about the postdrome brainfog. Here it is: Here is a close up of the journal page: Text of Page: 08.22.14 | Day 4 “postdrome” | journal page: Postdrome – “I lost my head in San Francisco / Waiting for the fog to…