Dear Hospital CEO: a letter finally sent

Last year on March 1, I had an unexpected and devastating visit with the DO who had taken over as my primary care physician. She had done a lot for me: set up my first mammogram, referred me to an amazing pain specialist, and while I was in a CGRP study prescribed the other migraine…

The Meds of Medusa

As my neck is still horribly stiff and painful in a way that feels connected to the 9 day old migraine that was finally obliterated on the second floor of Wood County Hospital Friday morning at 10 am, I am sitting here thinking of the amount of medication it took to truly break it. In…

Everything Is Horrible – I mean, Fine!!!

My stomach hurts. J has resigned and is wrapping up his cases. And looking for a new job. The changes and our tension make the girls nervous and they are acting out, making it difficult for us to get anything done. We all have colds. I have a fever. And cold sores, which I get…

365 Days of Migraine: Day 8 “PANIC (new moon)”

Right now, I have a headache. I had a small one this morning, for which I took half an imitrex, and I felt good about that, considering yesterday I needed two. At noon, I went to the tattoo shop to get my very first tattoo, a crescent moon I acquired in 1996, covered by an…

Migraine Milestones

Today was my seventh Green Day of the month. I have not been to the ER for six weeks, four days. We traveled by car today, for about three hours, total. A trip to Lake Erie, and to find the old farmhouse where I spent my first eight years. I didn’t need to take an…

Thank You Dr. Mitzi

As I drove the 25 miles north to Mercy Pain Management today, I took shaky deep breaths and did some positive self-talking, feeling like my heart was going to pound out of my chest. I repeated in my head “I will NOT freak out. I WILL not freak out. I WILL NOT FREAK OUT.” I…

Confusion & Worry.

What do you do when your chronic illness provider is world renowned, but doesn’t give you the kind of care you feel you deserve? What do you do when your pain diary doesn’t show the improvement you are supposed to be seeing? What do you do when you are told at two separate appointments that…

On Second Thought

Maybe the Pain Management Clinic Will actually be beneficial. I like and respect Dr. S And she recommended this. The last two weeks have been brutal It is easy to give up hope But I did fight, and got this appointment And while I fear it will go badly There’s no reason to be upset…

Symptomatic & Stressed

I don’t know what’s going on with me. Since Thursday I’ve been sick. I don’t know if it’s cluster-style shadow pain; a cold or virus; a sinus infection; prodrome to a significant migraine. At least I know it’s not medication side effects, since I haven’t started anything new. Oxygen and sumatriptan tablets and injection did…

The Most Important Thing: Validation.

The appointment with C. when I was prescribed the oxygen for home use went so badly I didn’t write much about it. I cried; I basically begged. My pain therapist had thought my case warranted a prescription for narcotics, and made me feel like I mattered, like how I felt and feared mattered.  The nurse I…