Aimovig.

“Aimovig.” A drug developed just for migraine disease, the very first preventative: “Aim.” “Vig” = Vigor, what we will have more of, even if improvement is only 10-20%. Generic name: erenumab. Drug company: Amgen / Novartis, who are not paying me. Side effects: possible injection site irritation and constipation. Have you looked at the side…

Everything Is Horrible – I mean, Fine!!!

My stomach hurts. J has resigned and is wrapping up his cases. And looking for a new job. The changes and our tension make the girls nervous and they are acting out, making it difficult for us to get anything done. We all have colds. I have a fever. And cold sores, which I get…

FRIENDS

Yesterday’s post was written in the throes of depression and fear. What I should never have said is that I lack friends. Yes, I’m disappointed to have recently lost some of the closeness I’ve felt in some significant relationships, but honestly I have more friends, far and wide, in person and online, than I probably…

Day 18: “brave like my mama” by Zo, age 5.

My precious five year old daughter, Zo, born by emergency c-section at 35 weeks due to bleeding placenta previa, who was a fighter and a miracle and a dream come true from the moment of her unlikely conception, who has had near constant strep since March and can barely eat due to the probably pus-filled,…

Day 15: F E A R

| The fear begins with aura. As soon as the floaties begin, those nefarious clear squiggles, my stomach tightens and the “what ifs” start. What if I miss the medication window? What if I choose the wrong medicine to take? Do I have enough? Mentally check through supply… and decide what to take. Figure out…

Confusion & Worry.

What do you do when your chronic illness provider is world renowned, but doesn’t give you the kind of care you feel you deserve? What do you do when your pain diary doesn’t show the improvement you are supposed to be seeing? What do you do when you are told at two separate appointments that…

This sucks

I am alone and feel like I’m falling apart. We are both emotionally unstable and I am chronically ill. My beautiful girls are basically living with my parents right now while I am prostrate and in grief. What will become of us?