Dear Hospital CEO: a letter finally sent

Last year on March 1, I had an unexpected and devastating visit with the DO who had taken over as my primary care physician. She had done a lot for me: set up my first mammogram, referred me to an amazing pain specialist, and while I was in a CGRP study prescribed the other migraine…

i sing the body electric

   Yeah, so there’s my full name, the full names of two of my friends, and the bar I used to occasionally hang out in. That’s okay. Hi, I’m Elizabeth Roberts-Zibbel. That’s me, Facebook reminded me, with my friend Phil, four years ago. That photo makes me happy. Watching three particularly crazy episodes of The…

Lesions & Lessons (or: Life Sucks and Then You Go Back To Bed)

Today has been a Very Bad Day. It started with a terrible headache, pulsating in rhythm with the twitching of my left eye, which has been happening recently upon the acquisition of an ugly, painful, stigmata-like wound on my corresponding temple. Starting as an odd, tiny bump, it increased in size and noticeability as I…

Challenges: Personal and Otherwise

  From the very start, I have had mixed feelings about the Ice Bucket Challenge. Undeniably the online phenomenon, which quickly went viral, has raised a huge amount of money for ALS, regardless of what percentage of the funds actually get used for research (which is a discrepancy some have pointed out). Another truth is,…

It’s All Relative.

I haven’t been able to kick this headache until today, at least I hope I’ve kicked it. I had a virus last weekend with different feeling head pain, but pretty sure this three or four day long thing I just finally got rid of now was a migraine even though it felt weird, not my…

Grouchy.

I am in a terrible mood. My head has been lurking in the 3-4 range for days, not enough to even lie down with, but enough to hurt. Enough to make every job, every trip back and forth to Zo’s nature camp or the store or the dog park, every run of the dishwasher or…

SSI & Creative Money Making

I haven’t been secretive about the fact that I’ve been depressed this week. A lot of it stems from not working; facing extreme poverty; and not understanding how my monthly SSI benefit is calculated. When I discovered that J’s future wages were being based on a 3 paycheck month, I was ecstatic. However after I…

Caregiver Contribution Revisited

A couple months ago, I posted a picture J had drawn of himself trying on my non-rebreather oxygen mask. The plan was to have him draw days we shared that were significant to my illness, maybe once per week, and post those, with the eventual (rather lofty) goal of publishing it as a book, perhaps…

WWED?

As I re-read the contents of this blog, spanning the past few years with several long gaps, varying degrees of anonymity, and accompanying various use of writing skill (along with good judgement or lack thereof), I wonder about the “lady” I’ve become. In real life, I’m not sure I am any longer a worthwhile friend,…

ER, Again

Asia is barking and anxiety yawning and upset. I am in my “Migraine Awareness” hoodie, pajama pants and heading to the ER myself once again. Waiting for my dad to take me there at around 6:15 pm. John thinks he’s getting out tomorrow, I think that’s too soon. They’re not even giving him any meds….

I love my dog part 2

It’s amazing how any time I manage to write about something positive, there is an equal and opposite reaction to contradict what I’ve expressed to the world. Because I was down, the night got crazy. Both my mother-in-law and my dad had to come over at different times which worked Asia up. Then she probably…