Dear Hospital CEO: a letter finally sent

Last year on March 1, I had an unexpected and devastating visit with the DO who had taken over as my primary care physician. She had done a lot for me: set up my first mammogram, referred me to an amazing pain specialist, and while I was in a CGRP study prescribed the other migraine…

The Meds of Medusa

As my neck is still horribly stiff and painful in a way that feels connected to the 9 day old migraine that was finally obliterated on the second floor of Wood County Hospital Friday morning at 10 am, I am sitting here thinking of the amount of medication it took to truly break it. In…

Traumatic Birth: Life After Near-Death (Updated)

They took her. I was cut open and hastily re-stitched; paralyzed by a spinal block; bags of my own blood prepared and ready to transfuse if necessary, though apparently the physical danger to me was now over. The operating room was cold and sterile, glints of hard stainless steel, no friendly faces. My kind and…

A Tree Grows In Ohio

Today I ended up getting the worst headache I’ve had in months, severity-wise. I haven’t been sleeping well and didn’t make it to the girls’ joint birthday party. And the dread and constant worry of poverty. Feeling really hopeless right now, and know my only job in the world is to make my children feel…

Making The Invisible Visible [365 Days of Migraine: Day 17]

In 1998, when I got my fifth tattoo – actually my fourth AND fifth, I got them at the same time – my dad said I might “have a hard time finding a husband,” and my mom developed a theory. Her theory had to do with my migraines, and how my new passion for getting…

Turn And Face The Strange

Today is my birthday. In general, like many adults, I dread this day every year. Not because I have a problem with my age so much as the marking of another 365 days gone by, facing where I am in juxtaposition with where I feel I should be, or thought I would be. I am…

Hi

Things aren’t going too well. I have Liebster Awards to process and drafts to finish but I just can’t. Our poverty is getting the best of me. I’ll write more when I can.

Migraine Milestones

Today was my seventh Green Day of the month. I have not been to the ER for six weeks, four days. We traveled by car today, for about three hours, total. A trip to Lake Erie, and to find the old farmhouse where I spent my first eight years. I didn’t need to take an…

Thank You Dr. Mitzi

As I drove the 25 miles north to Mercy Pain Management today, I took shaky deep breaths and did some positive self-talking, feeling like my heart was going to pound out of my chest. I repeated in my head “I will NOT freak out. I WILL not freak out. I WILL NOT FREAK OUT.” I…

I Will Not Freak Out.

So, I have this appointment today. At a Pain Management Clinic. I really, really feel like I am heading into some kind of factory, or… what? A prison? don’t even know. Why am I so terrified? I need to keep reminding myself that I’m not just going there on my own, in a fit of…

#MHAM Blog Challenge, Day 30: A Whole New World in the ER

Today’s blog challenge for the last day of Migraine & Headache Awareness Month is to watch Aladdin’s “Whole New World” video and discuss the whole new world it would be for me if everyone understood the true pain of migraines and other headache disorders. I don’t need to watch the video, since I’ve seen Aladdin…

#MHAM Photo Challenge, Day 30: Gratitude

Today for the last day of Migraine & Headache Awareness Month, Diana Lee’s (somebodyhealme.com) Photo Challenge Prompt is “gratitude.” I selected a photo of the people for whom I have the most gratitude, who help me the most on a nearly daily basis in fighting my illness. My mom and dad have been fighting for…