Fireworks, Internal and External

This has been a crazy roller coaster of a week. Fresh from my pain management victory on Tuesday, I called our local Social Security office Wednesday morning to talk to Ms F, my case worker there. Unlike so many others I know, I was approved for Disability status immediately, but not for actual monetary benefits….

Thank You Dr. Mitzi

As I drove the 25 miles north to Mercy Pain Management today, I took shaky deep breaths and did some positive self-talking, feeling like my heart was going to pound out of my chest. I repeated in my head “I will NOT freak out. I WILL not freak out. I WILL NOT FREAK OUT.” I…

#MHAM Blog Challenge, Day 30: A Whole New World in the ER

Today’s blog challenge for the last day of Migraine & Headache Awareness Month is to watch Aladdin’s “Whole New World” video and discuss the whole new world it would be for me if everyone understood the true pain of migraines and other headache disorders. I don’t need to watch the video, since I’ve seen Aladdin…

Confusion & Worry.

What do you do when your chronic illness provider is world renowned, but doesn’t give you the kind of care you feel you deserve? What do you do when your pain diary doesn’t show the improvement you are supposed to be seeing? What do you do when you are told at two separate appointments that…

#MHAM Photo Challenge Day 13: Unmasked

“Mask” can have all sorts of meanings, literal and figurative. When we are sad or in pain, sometimes we cover those feelings so as to not make people uncomfortable. Or the pain itself can become like a mask that obscures who we truly are. As for me and this photo, I have a literal mask…

Serotonin Stockholm Syndrome

For those of us struggling every day with chronic invisible illness, one of the most discouraging feelings is realizing that someone may not believe the pain we’re suffering. It might be the careless observation of an acquaintance (“But you don’t look sick”); the frustrated words of a well-meaning friend (“You’ve tried so many medicines and…

Blind

*I usually don’t go for rhyming poetry, but this seemed to write itself today. John’s birthday was yesterday and by bedtime it had become particularly difficult. Sometimes, it’s true, migraines are emotional, stress and fear leaking from the heart to the mind. And so. New snow, that breathless bright white Usually brings joy, but some…

Blind

*I usually don’t go for rhyming poetry, but this seemed to write itself today. John’s birthday was yesterday and by bedtime it had become particularly difficult. Sometimes, it’s true, migraines are emotional, stress and fear leaking from the heart to the mind. And so. New snow, that breathless bright white Usually brings joy, but some…